Most of you reading this will automatically know what i am talking about otherwise you wouldn't have stumbled across me but for those that aren't sure.. tietze's syndrome is defined as the benign inflammation of one or more of the costal cartilage of the rib cage, causing pain in the chest and back. That is not my definition though.
Tietze's to me is so much more than just an "inflammation of the costal cartilages." Tietze's is the one thing in this whole world that keeps me going round and round in circles, unable to do the things that i love with the people that i love and with my perfect boyfriend of which none of this would be possible without because he's my strength.
Tietze's keeps me in this stupid routine of struggling to get up in the morning, pain killers, heating up my "teenage wheatbag" (you'll come across 'him'), taking some more pain killers, double wrapping a scarf around my neck, even more painkillers and then struggling to sleep. It sounds totally bizarre but other sufferers will know where i am coming from.
The only way tietze's syndrome has benifited me is that i now appreciate and value everything so much more and i take nothing for granted. It has taught me to be more understanding and patient. It takes something literally life changing like tietze's to give you this sort of perspective and its extremely hard to understand unless you have experienced it or something similar yourself.
I am in no way at all looking for sympathy. I just want to share how my life has changed since i was diagnosed with tietze's. One thing i would love from this though is contact with other sufferers as there doesn't seem to be many methods of treatment and i don't know anybody that suffers from the same condition.
Charlotte xx
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| My Teenage Wheatbag |
>>>>>>> I have attached a piccie of my "teenage wheatbag". Its simply a bag of wheat that my boyfriend brought me that i heat up in the microwave to ease my pain. Its nothing special but i couldn't live without it i'm afraid :-S
Hi Charlotte, My name is Elena and I suffer from Tietze syndrome as well. Mine is inherited, well I guess the predisposition is inherited, as my Mom suffered from it. Good news it is eventually goes away so I keep my hopes high. I know exactly how you feel. it is sooooo depressing condition, although I managed to attend all my college classes sometimes I wish it all went to as it was before.I feel anxious especially when I am outside on my own or travelling and this does not help either. Many people do not understand it, they think it is like chest pain when someone has flu or common cold, so it could be frustrating to be seen as a whiny person.
ReplyDeleteIn September hopefully I go to London to do a BA fashion course...so I am kinda exited and awfully scared as I potentially be on my own all the time.
Anyway.You are not alone.I hope you felling much better now as it is lovely and hot outside.
Have a lovely Easter and May holidays and speak to you soon.
E.
I am a teenage girl going through the same please emAil me Asap jumpservinvolleyballplayer101@msn.com
ReplyDeletehi, I am a fellow tietze sufferer and i completely understand what you mean when you feel lonely. I try explaining to my husband/family/coworkers why I can't lift groceries or even my own purse for very long because the pain becomes so intense. It completely interrupted my life , it feels like. I was going to go into theatrical combat/fight choreography but now I cant even work out much less throw a stage punch. I feel helpless and weak and it's so frustrating. But it has also helped me learn about myself and focus on other important things in my life like my art. Mine began when the second rib at the top of my rib cage popped out of joint from lifting something heavy and ever since I feel like it has controlled me so much. But if there is anything I can say, it's that pain can never control you, only strengthen you. I wish you all the best.
ReplyDeleteplease email me back with any tips or tricks that you have. nothing i have tried works. laurel.sein@gmail.com
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